[P.S. (In this case, P.S. stands for "pre script" I guess.) Thanks to those of you who have been praying for our prayer requests. Be sure to read Jean Gilliam's comment on yesterday's post referencing little 7-year-old J.E. who had his heel severed in a lawnmower accident!!!) If I may borrow Lorena's favorite saying, "God is so great!"]
Michael and the mad Mexicanas in Stephenville. Today was long and tiring, but after work, as I went to the store to buy some temporary stuffing for these girls (and one of the times I am most thankful I did not have sons is when I am checking out at the grocery store) I saw bunches of grapes, bunches of bananas, and bunches of Lorena's friends. Nony Godwin was there, and we had a wonderful visit. I have never seen the Godwin's wings, but I am certain beyond the shadow of a doubt that they are angels. They certainly seem to be heaven-sent, and I do not know what we would do without them.
Anyway, it took me an hour to pick up my few groceries. Between Nony, Debbie Thompson, Cynthia, Greg, and the dozen other folks who asked me how Lorena was doing, I did not know if I was going to make it home or not. I told Lorena last night how many folks ask about her -- and how many hits this blog has had -- and she cried. Hard. She was so scared that her friends and acquaintances would forget her. That would never happen. So many folks have mentioned in the past that they want to host her coming-home party. The loyalty that she engenders in her friends is beyond comprehension. I envy her that...
Now, about last night's fantabulous telephone conversation. Angie was our moderator, which is great because she always communicates with us much better than any of our other moderators do. When we called last night, they had just returned home after Angie had chauffeured Lorena and the nurse around. The fact that they had had a wonderful day was abundantly evident in that they were both downright giddy, LOUD, and laughing about everything. Angie always teases Lorena (exactly as a just-older sister would be expected to do), and Lorena responded to her teasing beautifully.
Now, on to what I learned. Saturday, the family celebrated Jorge's birthday at Jorge's house. (Jorge is just older than Angie who is just older than Lorena who is just older than Alma. Yes, there will be a test, so you had better pay attention...) Lorena had a wonderful time, and she has improved enough that they actually gave her a couple of spoonfuls of cerveza (which she really liked) and a spoonful of vino rojo which she did not like. (Angie teased her that she has lost her appreciation of cheap wine...) Lorena laughed many times as we discussed the party, and she obviously enjoyed herself immensely. She has always been extremely close to her family, and, even with the death of Mamá and Papá, the family has much to celebrate with Lorena's improvement.
So there Lorena was, in the center of her family's festivities, eating papaya, mango, orange, lima, watermelon, cantaloupe, pineapple, and banana-nut bread, sipping beer and wine, listening to the music and watching the dancing, laughing and fellowshipping with her family, having a joyous time... I guess I was completely stupid not to keep her here in the nursing home...
Eventually, Lorena grew tired and needed to rest, but the party was too loud and distracting -- and Lorena was not nearly ready to go back home -- so Angie took Lorena to her place which is just around the corner from Jorge's house. There, they laid Lorena on Angie's bed, an act that precipitated copious tears from Lorena. Concerned that she was hurting or disturbed about something, they began asking her their "20 questions" to try to find out what was wrong -- to no avail. Finally, they asked her to spell what was wrong. Her answer was heartbreakingly poignant: for the first time in over three years, for the first time since her stroke, she was lying in a real bed on a real mattress, and she was simply overcome by emotion. Apparently, they all cried together there for awhile. (Once again I am reminded of how much we all tend to take for granted, or, at least, I know I do. I cried several times during the course of our conversation, and this was one of them. I love to see Lorena reach these milestones.)
Lorena lay in the bed for short rest. Actually, I am sure she LUXURIATED in the bed rather than merely lying in it. (I know that I do when I go to bed now after far too many cramped, sleepless, agonizing nights watching over Lorena and far too many bus trips, flights, and terminals -- which I feel are so ironically named... I cannot believe that I ever took a nice, comfortable bed, upon which I can stretch out and SLEEP, for granted. God forgive me for being spoiled...) Anyway, after her nap, she wanted to sit up for awhile -- but not in her wheelchair. The fires of rebellion had been stoked, and she wanted to be set in Angie's recliner -- which she was and where she sat with gusto, laughing and luxuriating in it just as she did in the bed.
After Lorena had rested a while longer, they returned to the fiesta. Having had lain in a real bed, and having had sat in a nice recliner, she had now grown too rebellious to go back to the status quo. She did not want to sit in her wheelchair after they had wheeled her back into the party. She asked to sit in Jorge's rocking chair. Caprichuda [spoiled or capricious girl] that she is, she was soon sitting in the rocking chair overseeing the festivities like a queen sitting on her throne surveying her domain. [Lorena would love that simile, by the way. It would tantalize her Romantic streak. One of her Spanish ancestors was a baron, and she has always wanted to learn more about him. (Obviously, though, judging by the size of her family, none of her ancestors were barren...)]
The party was a huge celebration (for Jorge's birthday, for Mamá's and Papá's reunion, to exalt the family and the legacy of Mamá and Papá, to show family solidarity after the trauma of their passing, to commemorate Mya Naomi's arrival into the family, to celebrate Jorgito's engagement and July wedding, to cut loose and have some fun after the agony of illness, death, and adjustment to life without the head of the clan... And God only knows what all else they were celebrating. Such as the ability to celebrate, to laugh, to commune together. I envy them that. I tend to be pretty envious these days.) Lorena, however, took the celebration to a higher plane, and I am sure there was not a dry eye in the house after her display. (I know there was not one here as Angie was telling us -- and my heart thrilled to hear Lorena laughing delightedly in the background.) I am also certain that the party was Mexican-fiesta loud BEFORE her grandstanding, but, afterwards, I am equally sure that it undoubtedly registered on a seismograph somewhere. Anyway, Nacho or Alfonso, one of Lorena's brothers (Angie could not remember which one it was), looked over at Lorena to discover that she was using her right foot to rock herself in the rocking chair!!!!
Folks, that is AWESOME!!! Remember that here in the States, all her doctors told us repeatedly that she would never breathe normally again, that she would be fed through a stomach tube the rest of her life, and that she would regain no motor function. The only hope (curse?) that we were given was that she would LIVE (as a fully functioning brain trapped inside a completely quadriplegic body) until she died, probably of pneumonia induced by a lung infection. Now, here she was sitting ALONE in a rocking chair, sans tracheotomy, sipping beer and wine from a spoon just as any good Texican-Catholic-Baptist would do, while ROCKING herself using one of her feet. The party erupted. I am surprised that the Nayarit riot control forces were not called out... Please understand that she would not have been in any danger of tipping over from her rocking. In fact, I am sure her rocking was barely perceptible at first, but it is a HUGE milestone. I am indescribably proud of her and humbled by her. (I am equally sure that she will be sitting in a rocking chair very frequently from now on... She will see to that!!!) Needless to say, the fiesta was a huge success...
Lorena is still seeing the naturist who massages her with his homemade suction device (made from a baby-food bottle attached to a vacuum pump) and who coats her down with his green gluey goo made of magical herbs, seaweed, jungle plants, and who knows what else -- and then wraps her in toilet paper and ace bandages until she looks like a cheap Haunted House mummy. However, she is adamant that he is helping her, so I know, beyond a shadow of a doubt, that he is. And I thank God for him. If he is doing nothing else, he is giving her hope which is something no doctor here in the States gave her -- but which EVERY doctor who has seen her in Mexico has extended to her. I thank God for all of them as well.
The naturist sees his seemingly endless stream of patients in his simple jungle "clinic" on the outskirts of the pueblito of Aguacate a few miles outside Tepic. The clinic is a simple whitewashed concrete block house whose open garage has been made into a crude waiting room complete with folding chair, a couple of crude benches, and a couple of car seats. It is shaded by citrus and avacado trees and features chickens and dogs running around. When it isn't raining, many patients and their companions will seek the open air in the shades of the trees outside while they wait their turn. Quite literally, he has patients coming from all over Mexico.
His methodology is admittedly crude and primitive. The most sophisticated piece of equipment in his clinic is the aforementioned suction massage device. The only other electronic device I have seen there is the old oscillating fan that stirs the tropical air around in his simple waiting room that has always been jammed with patients when I have accompanied Lorena there for a treatment. Initially, he examined Lorena by tapping on different parts of her body, by flexing and releasing her appendages, by soliciting reflexive movement, and by manipulating her head and skull. After his first cursory examination, he promptly diagnosed that her brain was still swollen from the trauma of the stroke, and that the first necessity of treatment was to reduce its swelling in order to increase circulation to it and, thereby, to facilitate her recovery. In short, he wanted to make her look like someone out of a classic Three Stooges hospital skit... Which he promptly proceeded to do...
So, for that reason, her hair was cut Sinead O'Connor short in order for the goop to be applied to her scalp without creating a nightmarishly messy and painful coiffure. (I shave my head, and I would tease her that my hair was longer than hers...) However, the naturist has now decreed that her brain swelling has diminished to the point where it is no longer a problem -- SO SHE IS EXCITEDLY RE-GROWING HER HAIR!!! (I called her a show-off when they told me that, and she laughed gleefully. I am quite certain that she was not laughing WITH me...) She claims that she feels much better in every way -- and she certainly sounds as if she does!!!
The next bombshell they dropped on me is that they have ordered a "therapy table" for her. I do not understand exactly what its function is, but it is to be used somehow to lift her upright in a sling to start mimicking her walking, to place her weight upon her legs, hips, and back again, and to start retraining her body to support her and to walk. That is not a bad goal for a "hopeless quadriplegic"!!! They stressed that the therapy table is from somewhere in Europe, so I did not feel quite so bad when they told me it cost over $9000 USD. That is okay. I still should be able to retire before my 250th birthday... And if it would aid in Lorena's recovery, I would gladly let them flay me alive... I wish you could all hear her delighted laugh... (Just add the therapy table to my bill. It won't be long before folks will be confusing me with the U.S. government... Fortunately, red has always been my favorite color, but this is ridiculous...)
This news, in turn, led to more teasing and laughter. It seems that Lorena has been enjoying the earthly pleasures of eating and drinking a little too much for her own good. (I still get misty eyed remembering how ecstatic she was, and how ostentatiously she would savor food and drink, when they started feeding her by mouth.) Yes, folks, it seems that she has succumbed to the sin of gluttony so that the doctor has now put her on a diet!!! (Insert delighted Lorena laughter here!)
Actually, she has gained enough weight that the doctor is concerned that the straps on the sling upon which she will be hoisted in her "standing"/
"walking" exercises might cut into her hips and thighs. He wants to reduce her weight to make the exercises easier on her and on the therapists. Obviously, she is not wasting away...
I remember those days of horror here in the hospitals and the nursing home when she would be fed improperly via the PEG tube. Air would be admitted into the tube, with her liquid diet poured in on top of the air, trapping it. She had to be agonizing, lying flat on her back with a stomach full of trapped air. The inevitable would soon happen as her stomach would rebel against the offending air and expel it (forcefully!) in the only way it could. I had heard of projectile vomiting, but I had never seen it before. I saw her many times, lying on her back in her hospital bed, vomit out over the foot of the bed.
I had never known how traumatic vomiting is for a quadriplegic with a tracheotomy -- nor how terrifying. I quickly learned that it is just as traumatic and terrifying for family members witnessing the episode and assisting the quadriplegic. Frantically, I would try to comfort her even as I tried to clear her tracheotomy so she could breathe and tried to summon help from the staff. She would be crying as close to hysterically as she could as she lay in her lake of vomit. Subsequently, she would have to be undressed, bathed, and dressed again, the bedding would have to be stripped, the mattress washed and sanitized, the floor mopped, the bed made again, and she had to be put back in it. [I would usually have to make a scene to get them to brush her teeth and flush her mouth to try to offset the effects of her stomach acids on her teeth and to try to get some of the taste out of her mouth. She couldn't complain, you know...] To compound this, remember that she would be hooked up to an I.V. and a catheter -- and sometimes to oxygen. It was Dante-esquely horrendous.
Even worse, after she had vomited, she would be given no more nourishment or water -- in case she was ill. I acquiesced to the "superior" medical knowledge the first few times. Then I started making scenes worthy of the most notable Shakespearean dramas. I KNEW why she had thrown up her meal!!! I KNEW why she showed no signs of fever or any other symptoms indicating an illness. She had been induced to vomit by medical ignorance. Within a short time, to many of the nurses' obvious annoyance, I began to oversee her feedings, manipulating her PEG tube myself, kinking it before it was opened to prevent air from entering it, then kinking it again as soon as the last liquid disappeared down it, finally to cap it as quickly as possible.
Nonetheless, occasionally I would be out of the room -- or in a sleep-deprived stupor -- when she was fed, and we would once again get to do the heart-stopping, stomach-turning vomit drill. Normally, she would be given no more food or water until her next scheduled feeding, but I started screaming until they would at least replenish some of the water she had lost. I would get irate when she would be deprived of water after vomiting, even as the urine collecting in her catheter bag would turn dark amber. (I find that I am gritting my teeth and my pulse is pounding as I write this... Ah, the good old days...) I once saw her go over 24 hours with no appreciable nourishment or hydration because she vomited after three consecutive feedings. That was before I learned to be obnoxious... Needless to say, she WAS wasting away here in the States.
Heartlessly, I deprived her of our advanced medical knowledge and cutting-edge technology here in the U.S. by taking her to uncivilized and backwards Mexico. Surprise! Surprise! Surprise! (Thank you, Gomer!) She has not thrown up even once since her international translation -- and she has not been ill even once. [The doctors here in the States had told me that lung infections and other illnesses would be ever-present in her life for the rest of her life with her in the condition she was in... Not only would they be a constant in her life, but they would probably kill her. In Health South in Fort Worth, MRSA almost did.]
Thank God for backwards nations like Mexico where common sense is much more common and where doctors and nurses CARE for their patients instead of just "caring" for them...
Wait a moment while I slap myself. Lorena had some wonderful nurses, technicians, and therapists here in the States, and I am painting everyone with a bitterly broad brush. Both of us probably would not have survived had it not been for some of those caregivers here in the States who really gave good, loving, conscientious, capable CARE. Were it not for the sleep I was able to get when those blessed folks were on duty, I hate to think of the consequences my lack of sleep might have precipitated. And they did give me hope. Faith and prayer gave me hope as well, but in a sleep-deprived mind, in all candor, nothing can possibly bring one as close to God as death can... Those wonderful caregivers know who they are, and I am incapable of expressing the depth of my gratitude to them. Unfortunately, I never saw enough of any doctor except the one who almost killed Lorena to have any idea of how caring they were... [And I want everyone to know that I exempt Dr. Ong here in Stephenville from my diatribe. He "accepted" Lorena as a patient because he was a family friend, and he performed his role valiantly. I shall forever be grateful to him.]
Back to the oh-so-much-more-wonderful-here-and-now... Lorena is being put on a diet (to her great glee). Needless to say, everyone teases her mercilessly about it -- but you can bet she is not suffering any because of it. So I will bite the bullet (smiling as her beautiful laughter echoes in my memory), listening to the "cha-ching cha-ching" of our medical bills growing exponentially. Another of Lorena's favorite sayings was that time is much more valuable than money because money can be recuperated whereas time cannot. Lorena is losing time, so I am being stupid to worry about money.
And I have rambled on way too long here. If you have suffered through this mess and are still with me, thank you -- (and you really are masochistic, aren't you? [LOL]). God is our refuge and our strength. But we view you, our friends, as some of the most valuable, beautiful gifts God has given us. We thank Him for you, and we thank you for your prayers and support. Lorena's miracle continues -- and her laughter grows more joyful every day. To God be the glory.
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