March 9, 2006

  • I tried not to dwell on it today, but this is now year 3 ALS [After Lorena's Stroke].  We entered our third year this morning.  Our lives have changed immensely and traumatically, none more so than Lorena's.  She was always busy, always working, always studying, always helping others, always keeping house and home and family together and cared for, always being a friend, always living life to the fullest.  Then she stopped, and she nearly died.  She became a physiologically correct doll, who, except for the times that spasms would rack her body and contort her into bizarre and torturous shapes, would lie in the position she was placed, would be dressed, fed, bathed, and toileted at the whim of others.  Her life became a series of tedius rituals which all too often passed by without her ever seeing the sun and with her VERY seldomly being outdoors.


    I am amazed at her progress.  She should be dead.  She should, by all rights, be vegetative.  She should be a depressed, crying, suicidal basket case.  But she isn't.  She is alive, laughing, planning for a future of which she is an active part, caring for her family and friends, working hard to regain what she has lost.  Her miracle continues.  To God be the glory!!!!  Thank you all!!!

Comments (3)

  • Hope Lya is better. This crud has taken its toll! Kacie went from the puking to the barking like a seal now. Her's has turned into some kind of respiratory thing now, but the beauty of being two years old is that she doesn't care. So far it hasn't slowed her much. Hope you stay well so you can enjoy a little time off work next week!

  • Wow, Lorena is a miracle. I can tell that she must be an amazingly strong woman to have been through all of this and still living life as best as she can. You are lucky to have her, just as she is lucky to have you!!

  • Yes, I was thinking of my mom and dad the other day. It is very difficult for me to let my dad move so far away all alone. I think of things that I wish I could say to my mom. Things I should have said actually things I did say but I guess not in a way that she understood.I never really felt she understood me and it led to tension sometimes.We loved each other but not like I really longed for it to be. It makes me sad tht I couldn't really get my feelings across as much as I tried, she just had walls up and I could not get through them and I kind of gave up. Maybe I should have done something different. My dad and I get along great and he felt in the caught in the middle alot he always stood by her side but he did see my point of view. I sometimes feel like I have to explain things to my dad about how I feel but I can not even talk about it now because it makes him sad to think of how much he misses my mom, as I miss her and I would never be able to talk to him about it without crying. So I keep alot inside and sometimes it just comes out. I am generally a very happy person though. Thankyou for your concern and encouragement and thankyou for encouraging my daughters. Holly is graduating and I do believe she has finally picked a major "sonography"...yes doing sonograms on pregnant women and being the first tell them if it is a boy or girl....that would bring her great joy. It is very difficult to get in the program at TJC in fact she must get all of her 2 yrs of basics before she can apply and then they only take 12 people per year so the next 2 years should be no problem but after that we will be praying hard that she gets in.

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